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The Erythromelalgia Association
TEA WEBSITE PROBLEMS PDF Print E-mail
Written by   
Monday, 30 November 2009 03:05

Founded in 1999, The Erythromelalgia Association is an international, non-profit, all volunteer organization that provides educational and networking services online and offline, supports efforts to raise public awareness of erythromelalgia, and helps fund research into this rare disorder. Funded entirely by donations, TEA is a member of the National Organization of Rare Disorders.

We have run into a major problem with our web host that has brought down The Erythromelalgia Association website and destroyed our database of members.  TEA has been able to salvage all member names and home addresses, but not our members’ email addresses.

We are currently constructing a new website with a new host and will need to upload our library of articles and archives of our newsletters as soon as the website is ready for TEA to administer.

TEA asks for your patience as we get through this difficult time.  Our Member Services phone number is 610-566-0797.   If you have any questions, please call that number and leave a message and a Board Member will return your call within 3 days.

Our email address is This e-mail address is being protected from spambots. You need JavaScript enabled to view it and you can send any correspondence or donations to:

The Erythromelalgia Association
200 Old Castle Lane
Wallingford, PA  19086
USA

Please go to the Register button on the menu on this page and add your name and email address.  Please note that the even though we have "Login" on the menu it is not yet ready for members to login.  We will notify you as soon as the TEA website is back up and running.

The Erythromelalgia Organization has as its mission to help fund research into this rare disorder; to raise awareness of EM among the general public; to identify, educate, and support those suffering EM’s painful symptoms; and to educate healthcare practitioners to recognize and diagnose EM.  

 

Last Updated ( Thursday, 10 December 2009 21:25 )